It has now been nearly 2 years since I started my blog. I am now a serious MND blogger!
I have Motor Neurone Disease (MND/ALS), and I started this blog to have fun, yes fun. It is about my living with MND, but with an absolute splash of humour.
I am very analytical, and of course when diagnosed with such a disease you look at what can be done, what research etc is going on.
I write articles about research, diagnosis, prognosis etc. I am straight talking and need scientific evidence to any claims. I dig deep and don’t suffer fools. I don’t want sufferers wasting their time with hopeless theories, therapies etc. So don’t expect me to placate or agree with comments just because it’s nice.
I have alter egos, the amazing Lord Bragg, and the delicious Pamela Bragg (see below). They pop up now and then to add spice to my stories, but also they may say things you want to say but you just haven’t got the guts!
Awareness is everything for MND/ALS. Not many people know what it is, and that this disease affects 1 in 400 of us in our lifetimes! More common that you thought? So why is it referred to as a rare disease??? And there are several names for apparently the same disease! Motor Neurone Disease (MND) or ALS (Amyotrophic Lateral Sclerosis). Is there a difference etc. Well tune into my blog to get all the latest info!
Take a look at my archives. Start at the bottom, and treat it like a box set!
Some posts to get you hooked.
Serendipity or Strategy – this was Lord Bragg’s first appearance.
It’s amazing what you overhear – the charming Pamela Bragg showed her face!
My summer 2016 fund raiser – We raised over £10,000 from an auction and music night.
Every so often I will write a research update. It’s on my blog under the research tab, but if you are struggling to find the posts click on the following link.
Lee (aka onein400, the MND blogger)